Tag Archives: Wilm’s Tumour

Updated Christian’s Story page

I received an email yesterday from a lady whose 4 year old son has just had a relapse from a Wilm’s Tumour, a very similar situation we were in a few years ago. She told me that Christian’s story has given her a glimmer of hope during a terrible and frightening time. The fact that it has helped at least one person has given me the inspiration to go through Christian’s Story  page and get rid of dead links and break the text up with some pictures.

The fact is, children do recover from relapsed cancer, and Christian is living proof, we sincerely wish the best for Karen and her family.

Posted in Blog, Christian's Story. Tagged with , , .

Good News and Bad

(Very) Good news – CT scan confirms no spreading of cancer into lungs or, in fact, anywhere else.(Slightly) Bad news – biopsy shows sign of muscle in the tissue, this means it is either a variant of Wilms tumor (fetal rhabdomyoblastic) or it is a completely different cancer (rhabdomyosarcoma). This other cancer would be treated in the same way as a Wilm’s tumor so Kathy Pritchard-Jones suggests we start on the chemotherapy straight away. It would be very unusual for rhabdomyosarcoma not to have spread out of the kidney so Kathy still feels that the Wilm’s tumor is the far more likely problem. They will do more analysis of the biopsy to help decide. Christian had his first lot of Chemotherapy at the Royal Marsden at about 5.00pm.

Posted in Blog, Christian's Story. Tagged with , , .

The awful news

Christian had a lump in his tummy so we took him to Jake McKinnon, the pediatrician who originally diagnosed his reflux a year ago. He was immediately concerned and we took him for an ultrasound and an x-ray which seemed to confirm a Wilms tumor in the kidney. Blood and urine tests were taken. Keith Holmes is a pediatric surgeon who happened to be consulting at the same surgery on that day and he agreed that this was the most likely scenario and referred us to the Royal Marsden Hospital.

Posted in Blog, Christian's Story. Tagged with , , , , .