I have just brought Christian home. He has a nasty cough but they think that it is viral, not bacterial and therefore not any more dangerous than if he wasn’t neutropenic. Claudia is taking him in for a checkup on Sunday morning to make sure that he is still OK. Henry and I will be…
The first round
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At The Royal Marsden
Claudia took Christian down to the Royal Marsden today for his chemotherapy. Unfortunately he’s not very well so they have decided to keep him in. I’m on my way down there to take over and Claudia will be home tonight.
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Home
Claudia brought him home today. He seems a bit better; as he is going in to the Marsden tomorrow for chemo, they were happy for him to spend the night at home.
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A temperature spike
Christian had a high temperature yesterday so I took him to St George’s. I spent the night with him there and he has now been transferred to the Royal Marsden after much pleading from us. He has to stay in hospital for a couple of days as he needs intravenous antibiotics. The chemotherapy knocks the…
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I have started to get calls from people asking me to update the site and I guess I shouldn’t just write when there is a problem. Christian is still pretty good, he had a couple of niggly days after the chemo, but he is now pretty happy most of the time. For some reason he…
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Happy…
Just a quick note to say that Christian has been very happy for the last couple of days. He is eating and drinking well and is looking much better. He is a lot stronger than he has been for the last month and is walking around and playing normally. He is very giggly and has…
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Bone Scan
Christian was due back at the Royal Marsden today for a bone scan. The idea was to give him a sedative and then he would fall asleep and would lie still while the scan took place. The doctors even hoped that he would remain sleeping as they inserted a nasal gastric tube. Unfortunately two doses…
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Henry
A few people have asked me how Henry is coping with all of this. This evening, just after I put him to bed I asked him if anything was worrying him. Henry said “Yes, when Christian grows up will he be a man without any hair even on his legs?”. I explained that after the medicine stops,…
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Going Home!
We have, remarkably, been sent home. To quote the surgeon, “it is a record breaking recovery from a five hour operation”.
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Tough love
Christian is now out of intensive care and into his own room in St George’s. The phone number there is 0704 6200076 (x3517), Claudia is there tonight. He is sleeping lots and whimpering a little bit but is being kept comfortable by pain killers. Most of the tubes and monitors that he was on yesterday…