At The Royal Marsden
Claudia took Christian down to the Royal Marsden today for his chemotherapy. Unfortunately he’s not very well so they have decided to keep him in. I’m on my way down there to take over and Claudia will be home tonight.
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The Bone Biopsy
ByPeterChristian had the bone biopsy today, it all went fine and they got a good sample. We will not get the results until next week so the Hickman line insertion is going to wait until then. He was in pretty good form all day, the biopsy was quite intrusive so he’ll be a bit sore…
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Chemo
ByPeterChristian went to the Royal Marsden yesterday for a triple dose of chemotherapy and some tests . As he is now over 12kg (just) he had the full dose, until now he has been on 70%. It seems to have hit him fairly hard and he’s been a bit sickly today not being able to…
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Home!
ByPeterWe have been home for 10 days now and Christian is improving day by day although he is still a bit weak. We are hoping to be able to have his Hickman Line removed after radiotherapy and before we go to Spain mid July so he will be able to swim in the pool!
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Updated Christian’s Story page
ByPeterI received an email yesterday from a lady whose 4 year old son has just had a relapse from a Wilm’s Tumour, a very similar situation we were in a few years ago. She told me that Christian’s story has given her a glimmer of hope during a terrible and frightening time. The fact that it…
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Red
ByPeterChristian had his chemo last week which means there is only one dose left of this stage. After that, at the end of April, he will have the intensive chemo. We will be admitted to the Royal Marsden for it and Christian is likely to be very ill for at least two or three…
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Some great news and important info for triathlon participants
ByPeterWe have been given the green light to go ahead with the refurbishment of the children’s wards at St George’s Hospital in Tooting. The work will start in March with Nicholls ward and The Pinckney Ward, where Christian spent a lot of time, will come next. We are very proud to say that the Christian…
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