Fortunately, we came home Saturday evening and got a good night’s sleep ahead of Sunday’s run. It was a fantastic event, the photographer Jonathan Cook has taken loads of photos, it will take a bit of time to process them all, there a few here. If you are one of the people who have generously…
Christian had been given his antibiotics and a blood transfusion and he was all ready to go home. The community nurses would finish the course of antibiotics by visiting us once a day at home. Claudia then noticed that the scar on his leg were the autopsy was done was red and inflamed. We showed…
Christian’s Hickman line is red and sore, it is probably infected so we have brought him to St George’s. He is in good nature but is neutrapenic and his Hemoglobin levels are low so they have put him on antibiotics and he is going to have a blood transfusion. If he remains happy and doesn’t…
Christian came home on Thursday and has had a good weekend at home. He’s back for chemo at the Royal Marsden, this Thursday, Friday and Saturday. It is the one that needs him to stay in overnight for so Claudia will be in Thursday night and I’ll do Friday night. The run is going fantastically…
TWe were hoping to come home today but Christian isn’t well enough. He still has a slight temperature and his blood counts are low. He had a platelets transfusion and had a bad reaction to it which made him itchy and uncomfortable, He’s been given piriton which seems to have worked and is now sleeping…
Christian has been on very good form for the last couple of weeks. On Wednesday he even went into nursery for the morning, they have made of photo montage for the wall of his day in! The last few days he has had a bit of a cold and his temperature spiked to 38.5 on…
Claudia and Christian came home from the Royal Marsden today. Christian had a stem cell harvest done yesterday which went well, they got all they needed in one day, not two. He had a vascath fitted, which is a special line for the blood but that has already been removed. He is due for chemo…
Christian had a temperature on Tuesday so we have spent the last couple of days at St. George’s. It looks like it was an infection in his leg that caused the temperature. He has been on intravenous antibiotics which have done the trick and has been allowed home today. He will need to continue the…
