Christian came home on Thursday and has had a good weekend at home. He’s back for chemo at the Royal Marsden, this Thursday, Friday and Saturday. It is the one that needs him to stay in overnight for so Claudia will be in Thursday night and I’ll do Friday night. The run is going fantastically…
TWe were hoping to come home today but Christian isn’t well enough. He still has a slight temperature and his blood counts are low. He had a platelets transfusion and had a bad reaction to it which made him itchy and uncomfortable, He’s been given piriton which seems to have worked and is now sleeping…
Christian has been on very good form for the last couple of weeks. On Wednesday he even went into nursery for the morning, they have made of photo montage for the wall of his day in! The last few days he has had a bit of a cold and his temperature spiked to 38.5 on…
Claudia and Christian came home from the Royal Marsden today. Christian had a stem cell harvest done yesterday which went well, they got all they needed in one day, not two. He had a vascath fitted, which is a special line for the blood but that has already been removed. He is due for chemo…
Christian had a temperature on Tuesday so we have spent the last couple of days at St. George’s. It looks like it was an infection in his leg that caused the temperature. He has been on intravenous antibiotics which have done the trick and has been allowed home today. He will need to continue the…
Christian needs to have a stem cell harvest next week. It will involve him going into The Royal Marsden for a couple of days where he will get a new line fitted, unfortunately the Hickman Line will not work for this. They will take blood and draw stem cells which will then be frozen. Stem…
7th January 2007 Claudia here! Peter has instructed me to write the latest update so please bare with me as I am under a lot of pressure to live up to the usual high standards! Christian was fine over New Year, if a bit tired and emotional (or was that me?!). His Hickman Line is…
30th December 2006 Fortunately, Christmas was fairly peaceful. We had to visit the hospital every day in the morning to get some GCSF but that was much better than the 3 visits a day it looked at one point that we would be making. Christian’s hair started to fall out so we had to give him a…
We have been in and out of St. George’s for the last few days getting antibiotics for Christian. He has also had GCSF to boost his neutrophils and a platelet transfusion as they were very low. The last couple of nights we have brought him home to sleep and yesterday he was home most of…
Christian and I are currently at St. George’s. He got a temperature yesterday and as he is very neutropenic he can’t fight infection. He is on antibiotics and is happy so I am hoping we get home later today or tomorrow. His Hickman line has become slightly dislodged so they struggled to get blood out…
