Christian had a high temperature yesterday so I took him to St George’s. I spent the night with him there and he has now been transferred to the Royal Marsden after much pleading from us. He has to stay in hospital for a couple of days as he needs intravenous antibiotics. The chemotherapy knocks the…
I have started to get calls from people asking me to update the site and I guess I shouldn’t just write when there is a problem. Christian is still pretty good, he had a couple of niggly days after the chemo, but he is now pretty happy most of the time. For some reason he…
Christian was due back at the Royal Marsden today for a bone scan. The idea was to give him a sedative and then he would fall asleep and would lie still while the scan took place. The doctors even hoped that he would remain sleeping as they inserted a nasal gastric tube. Unfortunately two doses…
A few people have asked me how Henry is coping with all of this. This evening, just after I put him to bed I asked him if anything was worrying him. Henry said “Yes, when Christian grows up will he be a man without any hair even on his legs?”. I explained that after the medicine stops,…
We have, remarkably, been sent home. To quote the surgeon, “it is a record breaking recovery from a five hour operation”.
Christian is now out of intensive care and into his own room in St George’s. The phone number there is 0704 6200076 (x3517), Claudia is there tonight. He is sleeping lots and whimpering a little bit but is being kept comfortable by pain killers. Most of the tubes and monitors that he was on yesterday…
The surgery seems to have gone very well, Christian was in theatre for 5 hours. The surgeon, Keith Holmes is confident he removed all the tumour. It was 10cm x 15cm and 1.1Kg, almost 10% of his body weight. He is now recovering at the Pediatric Intensive Care Unit at St. George’s. I have come…
We took him from the Royal Marsden to St George’s this morning for some blood tests. He will have the operation there tomorrow morning. We are now home and as he was in such a good mood I took some photos to show you the new haircut. By the way, Claudia received this from a family friend…
Christian has been much better for the last couple of days. The antibiotics seem to have cleared up the infection and he is eating and drinking, if somewhat selectively. He had the operation today to take a sample of bone marrow and we should get the results for that tomorrow. He also had a tube…
