We have been home for 10 days now and Christian is improving day by day although he is still a bit weak. We are hoping to be able to have his Hickman Line removed after radiotherapy and before we go to Spain mid July so he will be able to swim in the pool!
We took him to the Marsden where we met Kathy Prichard-Jones, she is the professor of pediatric oncology and happens to run a large team of researchers who research Wilms tumors. Wilms tumors have been “curable” for 20 years or so and 90% of children apparently make a full recovery. The treatment is chemotherapy for…
We are very proud to annouce that Christian has released a beautiful album of piano music all written and performed by him. The Waves by Christian Blandford is available on all major streaming services and can be bought on i-tunes. Please take a listen!
The biopsy result finally came through today and the growth in Christian’s leg was confirmed to be a reoccurrence of the Clear Cell Sarcoma. We are taking him for his first Chemo on Sunday and he will stay in overnight so they can keep an eye on him. He may be home during the day…
Christian has still been a bit unwell today so he’s been given antibiotics. The good news is that he managed to stay still for the CT head scan without anesthetic, and that was negative. The bone scan and bone marrow sample will have to wait until Monday. His chemotherapy will wait until tomorrow too when…
I stayed overnight with Christian at the Royal Marsden. The main concern is that he is not eating or drinking. In order for him not to get dehydrated he is on a drip and they are considering putting a tube down his throat so they can nutrients into him. It’s not as bad as it…