The first round

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    Chemo

    Christian went to the Royal Marsden yesterday for a triple dose of chemotherapy and some tests . As he is now over 12kg (just) he had the full dose, until now he has been on 70%. It seems to have hit him fairly hard and he’s been a bit sickly today not being able to…

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    Villa on offer…

    Friday 27th May We were hoping to be heading to our villa in Spain tomorrow for a week’s relaxation over half term. Unfortunately Christian’s neutrophils are a bit low. This means that even though he is very happy at the moment, he is susceptible to infections, and a it’s not advisable for him to be…

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    A new portacath

    Wednesday 11th May We were in St George’s today for Christian to have an operation to have a new portacath fitted. He is now home and all is fine. The only drama was that an antibiotic was given too quickly (it should have been an infusion over an hour and it wasn’t) and he got…

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    News

    Christian had an operation on Thursday to take out the portacath and came out on the same day. He’s got a canular in his hand (a needle and tube) which is being left in as he needs more antibiotics. We are taking him back to St. George’s this afternoon for the last dose and they…

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    Fund Raising

    We got back from St George’s yesterday. Christian is on intravenous antibiotics once a day which are being administered by a community nurse. He has the same bug as before (an infection of the portacath) but the doctors are hoping that a full intravenous course will clear it up. If not he will have to…

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    A Spike

    I’ve just got back from a night with Christian on the ward at St George’s so forgive me if this all comes out as a jumbled mess. All weekend Christian was very happy, eating and drinking well and generally having fun. Sunday night something hit him and he was throwing up during the night. He…

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    Christian came home today. He has been given an oral antibiotic instead of an intravenous one and, as such, he does not need to go into hospital for it. He seems in pretty good spirits, if a little bit disorientated.

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    Problems…

    Henry and I returned from the slopes today. Unfortunately Christian has not been well in our absence. The portacath (a tube fitted to an artery near the heart to allow access the the bloodstream) has become infected. He and Claudia have spent all of the week at The Royal Marsden where he has been on antibiotics….