I stayed overnight with Christian at the Royal Marsden. The main concern is that he is not eating or drinking. In order for him not to get dehydrated he is on a drip and they are considering putting a tube down his throat so they can nutrients into him. It’s not as bad as it…
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Chemotherapy effects
10.00am – Christian is not reacting very well to the chemotherapy. One of the side effects is a sore jaw, and this seems to be making him uncomfortable when he eats and drinks. The doctors were a bit concerned so we brought him to St. George’s Hospital last night and Claudia and he stayed the…
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Good News and Bad
(Very) Good news – CT scan confirms no spreading of cancer into lungs or, in fact, anywhere else.(Slightly) Bad news – biopsy shows sign of muscle in the tissue, this means it is either a variant of Wilms tumor (fetal rhabdomyoblastic) or it is a completely different cancer (rhabdomyosarcoma). This other cancer would be treated…
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An Infection
Went back to St. George’s because a urine infection had been detected from Monday’s tests. Antibiotics administered intravenously and orally. Christian a bit niggly today…
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Biopsy
Keith Holmes performs a biopsy at St. George’s and fits a portacath (a direct access to the bloodstream for drugs and removal of blood). Christian woke up a bit upset but was happy for most of the afternoon.
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First Visit to The Royal Marsden
We took him to the Marsden where we met Kathy Prichard-Jones, she is the professor of pediatric oncology and happens to run a large team of researchers who research Wilms tumors. Wilms tumors have been “curable” for 20 years or so and 90% of children apparently make a full recovery. The treatment is chemotherapy for…
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The awful news
Christian had a lump in his tummy so we took him to Jake McKinnon, the pediatrician who originally diagnosed his reflux a year ago. He was immediately concerned and we took him for an ultrasound and an x-ray which seemed to confirm a Wilms tumor in the kidney. Blood and urine tests were taken. Keith…
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This is a copy of the original blog we wrote to keep our family and friends informed when Christian was being treated Christian was born on 19th July 2003 at 10.25am