Christian had the bone biopsy today, it all went fine and they got a good sample. We will not get the results until next week so the Hickman line insertion is going to wait until then. He was in pretty good form all day, the biopsy was quite intrusive so he’ll be a bit sore…
Christian had a Hickman Line fitted today, they also took a sample of bone marrow from his hips for testing. The operation went fine and he is now at home and relatively happy, if a bit concerned about the tube going into his chest… The results from the Bone biopsy came back today and unfortunately…
We took Christian to Stanmore Orthopedic Hospital today for another bone biopsy. It all went fine and the surgeons are confident that they got a decent sample this time. He is a bit sore but was allowed home. The results may take over a week but we are (sort of) hoping they come quicker so…
The biopsy result finally came through today and the growth in Christian’s leg was confirmed to be a reoccurrence of the Clear Cell Sarcoma. We are taking him for his first Chemo on Sunday and he will stay in overnight so they can keep an eye on him. He may be home during the day…
We have just got back from the Royal Marsden. Christian had two different Chemotherapy drugs, Etoposide and Carboplatin. Carboplatin is given over an hour. Etoposide is also given as an hour drip but for 3 consecutive days, so he had it on Sunday, today and is due to go back for the last dose tomorrow….
We came in to the Royal Marsden today for chemo and Christian temperature “spiked”. It would seem that he has an infection of some kind, probably viral. He has been given intravenous antibiotics and will need to stay overnight as the next dose is due at 1.00am. From tomorrow, it will be due every 24…
Christian and I are currently at St. George’s. He got a temperature yesterday and as he is very neutropenic he can’t fight infection. He is on antibiotics and is happy so I am hoping we get home later today or tomorrow. His Hickman line has become slightly dislodged so they struggled to get blood out…
We have been in and out of St. George’s for the last few days getting antibiotics for Christian. He has also had GCSF to boost his neutrophils and a platelet transfusion as they were very low. The last couple of nights we have brought him home to sleep and yesterday he was home most of…
30th December 2006 Fortunately, Christmas was fairly peaceful. We had to visit the hospital every day in the morning to get some GCSF but that was much better than the 3 visits a day it looked at one point that we would be making. Christian’s hair started to fall out so we had to give him a…
