We got back from St George’s yesterday. Christian is on intravenous antibiotics once a day which are being administered by a community nurse. He has the same bug as before (an infection of the portacath) but the doctors are hoping that a full intravenous course will clear it up. If not he will have to…
Christian has been home all week, is eating and drinking well and seems very happy. We are waiting for the antibiotics course to finish this weekend to see if his infection comes back or not. If it does come back, there may be no option but to return to St George’s to have his portacath…
Good news and bad news: the good news is that Christian has been in a fantastic mood for the last couple of days, he was very taken with his cousins Elizabeth and Thomas who came around for a barbecue yesterday (Elena took some photos hereand here). The bad news is that the blood cultures from…
Wednesday 11th May We were in St George’s today for Christian to have an operation to have a new portacath fitted. He is now home and all is fine. The only drama was that an antibiotic was given too quickly (it should have been an infusion over an hour and it wasn’t) and he got…
Friday 27th May We were hoping to be heading to our villa in Spain tomorrow for a week’s relaxation over half term. Unfortunately Christian’s neutrophils are a bit low. This means that even though he is very happy at the moment, he is susceptible to infections, and a it’s not advisable for him to be…
We made it through the difficult bit after the chemotherapy by giving Christian water from a syringe every 10 minutes, which he managed to keep down. He is now happy again and is eating and drinking well. There are now only a couple of weeks left to the run! As you can see from the…
First things first, Christian has been pretty well recently hence the lack of updates. His hair is growing back a bit and his speech is coming on very well. In true Blandford/Parish style, it is now tricky to keep him quiet. Yesterday was the 10km run that I have been talking about. Imanaged to drag…
Friday 15th July Christian was due to be having his chemotherapy at the Royal Marsden today. Unfortunately he has had a high temperature since yesterday afternoon which is a sign of infection. Claudia took him to the Royal Marsden where they started him on antibiotics and then brought him to St George’s where I am…
