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The doctors decided to keep Christian in for further examination as his blood pressure was a bit high. The good news is that he was released earlier today and we are now home.
Christian’s Story
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Dora
I almost didn’t update the site today because there is no real news. But I guess you may like to know that Christian has been in a lovely mood for most of the day. (Auntie) Sam and (Uncle) Paul came around and he spent most of the day happy and was very excited with his…
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An Infection
You may remember that Christian was due in hospital today to have a head scan and have a sample of bone marrow taken. He needs a general anesthetic for these and he unfortunately is not well enough to have it. He has a bit of a temperature and his breathing is a bit too fast,…
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Antibiotics
Christian has still been a bit unwell today so he’s been given antibiotics. The good news is that he managed to stay still for the CT head scan without anesthetic, and that was negative. The bone scan and bone marrow sample will have to wait until Monday. His chemotherapy will wait until tomorrow too when…
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Some improvement
Christian has been much better for the last couple of days. The antibiotics seem to have cleared up the infection and he is eating and drinking, if somewhat selectively. He had the operation today to take a sample of bone marrow and we should get the results for that tomorrow. He also had a tube…
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We took him from the Royal Marsden to St George’s this morning for some blood tests. He will have the operation there tomorrow morning. We are now home and as he was in such a good mood I took some photos to show you the new haircut. By the way, Claudia received this from a family friend…
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The Surgery
The surgery seems to have gone very well, Christian was in theatre for 5 hours. The surgeon, Keith Holmes is confident he removed all the tumour. It was 10cm x 15cm and 1.1Kg, almost 10% of his body weight. He is now recovering at the Pediatric Intensive Care Unit at St. George’s. I have come…
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Tough love
Christian is now out of intensive care and into his own room in St George’s. The phone number there is 0704 6200076 (x3517), Claudia is there tonight. He is sleeping lots and whimpering a little bit but is being kept comfortable by pain killers. Most of the tubes and monitors that he was on yesterday…
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Going Home!
We have, remarkably, been sent home. To quote the surgeon, “it is a record breaking recovery from a five hour operation”.
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Henry
A few people have asked me how Henry is coping with all of this. This evening, just after I put him to bed I asked him if anything was worrying him. Henry said “Yes, when Christian grows up will he be a man without any hair even on his legs?”. I explained that after the medicine stops,…