Tag Archives: St George’s Hospital

More News

We made it through the difficult bit after the chemotherapy by giving Christian water from a syringe every 10 minutes, which he managed to keep down. He is now happy again and is eating and drinking well. There are now only a couple of weeks left to the run! As you can see from the total at the top of this page the sponsorship is going fantastically well.

This will make a real difference to the comfort of the children being treated at St George’s. I have discussed the money with the sister in charge and the ideas so far are :

1. New curtains and blackout blinds
2. High Chairs
3. Bed Pans (they can’t get any on their budget!)
4. New child friendly decor or pictures
5. Children’s cutlery and plates
6. New toys and budget to replace toys when they get damaged

Thanks again to all of those people who have generously pledged sponsorship.

Because there are now 9 people running from Morgan Stanley, they will match up to £18,000! so your donation could be worth twice what you give.

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Villa on offer…

Friday 27th May

We were hoping to be heading to our villa in Spain tomorrow for a week’s relaxation over half term. Unfortunately Christian’s neutrophils are a bit low. This means that even though he is very happy at the moment, he is susceptible to infections, and a it’s not advisable for him to be too far from home.

This means our villa is free for the next two weeks and we’ll be happy if anybody can make use of it. The details are herewww.villabegur.com. A small contribution to the sponsorship fund may be required depending on financial circumstances!

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A new portacath

Wednesday 11th May

We were in St George’s today for Christian to have an operation to have a new portacath fitted. He is now home and all is fine. The only drama was that an antibiotic was given too quickly (it should have been an infusion over an hour and it wasn’t) and he got “red man syndrome”. This meant he swelled up and was his skin was very itchy, some drugs soon cleared up the problem.

Claudia is taking Christian back to the Royal Marsden tomorrow for a triple dose of chemotherapy. He is now just having the three weekly triple dose, and no longer has the weekly single dose.

The good news is that we are now halfway through his treatment. All down hill from here…

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News

Christian had an operation on Thursday to take out the portacath and came out on the same day. He’s got a canular in his hand (a needle and tube) which is being left in as he needs more antibiotics. We are taking him back to St. George’s this afternoon for the last dose and they also want to take some bloods to make sure the infection has cleared up. Claudia is taking him to the Royal Marsden on Monday to discuss the next stage and we’ll find out when the portacath is going to be replaced then

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Fund Raising

We got back from St George’s yesterday. Christian is on intravenous antibiotics once a day which are being administered by a community nurse. He has the same bug as before

(an infection of the portacath) but the doctors are hoping that a full intravenous course will clear it up. If not he will have to have an operation to remove and replace his portacath and will be back at St George’s for a week or so.

I am doing a 10km run on the 3rd July. I have been wondering what would be the best place to raise money for and have decided after our stay at St George’s that the money will have most effect there. There is a ward called the Pinkney Ward which takes most of the kids with Cancer and they have their own charity administered by the very efficient Sister in charge. You can stipulate where you want the money spent and, depending on how much I raise, I have some good ideas. First on the list is some high chairs (there are none) and black out blinds (Christian wakes as soon as the sun comes up) but I have plenty of other ideas if I raise more.

Morgan Stanley, my very understanding employers, have offered to match anything I raise up to £2000. Claudia and I will personally do the same, this means your generous donation could be worth 4 times what you give.

Thanks in advance…

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A Spike

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I’ve just got back from a night with Christian on the ward at St George’s so forgive me if this all comes out as a jumbled mess. All weekend Christian was very happy, eating and drinking well and generally having fun. Sunday night something hit him and he was throwing up during the night. He was due to go to The Royal Marsden for a checkup and some drugs to boost his white blood cell count on Monday so we went early and spent all day there. He had a slightly high temperature and he was given some antibiotics.

By the end of the day he seemed a bit better so we were sent home with the strict instructions to phone if his temperature “spiked” again. By 9.00pm his temperature was up to 38.7 and however hard I tapped the thermometer it wouldn’t go lower. As Claudia spent a lot of Sunday night up with Christian, I took him to the ST George’s Hospital.

He has now been given two more types of antibiotics until they get results of blood tests which show what particular bug he has. One of the concerns is that he may have either an infection in his portacath or the same infection has come back from a couple of weeks ago. If this is the case he may need to have an operation to have it replaced.

If, however, it is a different infection it may be treatable at home by either oral antibiotics or by once a day intravenous antibiotics that the community nurse would administer. The care at St George’s was very good last night and although it is not as comfortable as the Royal Marsden it wasn’t too bad.

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A temperature spike

Christian had a high temperature yesterday so I took him to St George’s. I spent the night with him there and he has now been transferred to the Royal Marsden after much pleading from us. He has to stay in hospital for a couple of days as he needs intravenous antibiotics. The chemotherapy knocks the white blood cell count which makes it difficult for him to fight infections without help. We are hoping he’ll be back home later this week. Claudia is currently at the Royal Marsden with him.

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Going Home!

We have, remarkably, been sent home. To quote the surgeon, “it is a record breaking recovery from a five hour operation”.

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The Surgery

The surgery seems to have gone very well, Christian was in theatre for 5 hours. The surgeon, Keith Holmes is confident he removed all the tumour. It was 10cm x 15cm and 1.1Kg, almost 10% of his body weight. He is now recovering at the Pediatric Intensive Care Unit at St. George’s.

I have come home for a couple of hours and will be going back to spend the night with him there. Claudia will be home tonight.

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An Infection

Went back to St. George’s because a urine infection had been detected from Monday’s tests. Antibiotics administered intravenously and orally. Christian a bit niggly today…

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