Monday 31st January 2005
Christian had a lump in his tummy so we
took him to Jake McKinnon, the pediatrician who originally
diagnosed his reflux a year ago. He was immediately concerned
and we took him for an ultrasound and an x-ray which seemed
to confirm a Wilms tumor in the kidney (details
here). Blood and urine tests were taken. Keith Holmes
is a pediatric surgeon who happened to be consulting at
the same surgery on that day and he agreed that this was
the most likely scenario and referred us to the Royal
Marsden Hospital.
Tuesday 1st February 2005
We took him to the Marsden where we met
Kathy Prichard-Jones, she is the professor of pediatric
oncology and happens to run a large team of researchers
who research Wilms tumors. Wilms tumors have been "curable"
for 20 years or so and 90% of children apparently make
a full recovery. The treatment is chemotherapy for a few
weeks, followed by surgery to remove the kidney and growth
followed by more chemotherapy. He would need to have a
biopsy and a CT scan to confirm that it is Wilms tumor
and that it hasn't spread anywhere else (unlikely from
the fact that he is acting happy).
Wednesday 2nd February 2005
Keith Holmes performs a biopsy at St.
George's and fits a portacath (a direct access to the
bloodstream for drugs and removal of blood). Christian
woke up a bit upset but was happy for most of the afternoon.
Thursday 3rd February 2005
Went back to St. George's because a urine
infection had been detected from Monday's tests. Antibiotics
administered intravenously and orally. Christian a bit
niggly today...
Friday 4th February 2005
(Very) Good news - CT scan confirms no
spreading of cancer into lungs or, in fact, anywhere else.(Slightly)
Bad news - biopsy shows sign of muscle in the tissue,
this means it is either a variant of Wilms tumor (fetal
rhabdomyoblastic) or it is a completely different cancer
(rhabdomyosarcoma). This other cancer would be treated
in the same way as a Wilm's tumor so Kathy Pritchard-Jones
suggests we start on the chemotherapy straight away. It
would be very unusual for rhabdomyosarcoma not to have
spread out of the kidney so Kathy still feels that the
Wilm's tumor is the far more likely problem. They will
do more analysis of the biopsy to help decide. Christian
had his first lot of Chemotherapy at the Royal Marsden
at about 5.00pm.
Tuesday 8th February 2005
10.00am - Christian is not reacting very
well to the chemotherapy. One of the side effects is a
sore jaw, and this seems to be making him uncomfortable
when he eats and drinks. The doctors were a bit concerned
so we brought him to St. George's Hospital last night
and Claudia and he stayed the night. He has been on a
drip to rehydrate him and we are now waiting for more
news. 10.55am - We are taking him back to the Royal Marsden
for further checks.
Wednesday 9th February 2005
I stayed overnight with Christian at the
Royal Marsden. The main concern is that he is not eating
or drinking. In order for him not to get dehydrated he
is on a drip and they are considering putting a tube down
his throat so they can nutrients into him. It's not as
bad as it sounds, he's a bit niggly, but not too uncomfortable
and is sleeping well.
Claudia is going to stay there with him tonight. We are
not sure how long he will stay in hospital, he will be
allowed home when he is drinking on his own. He is now
neutropenic (has low blood white cells) from the chemotherapy
so he can not have paracetamol. He has been on Codeine
and Morphine as pain killers and will hopefully not maintain
a recreational taste for them.
Thursday 10th February 2005
The good news is that he has started eating
and drinking, mostly chocolate and biscuits, but at least
he is feeding himself. We should be able to take him home
tomorrow. The less good news is that the pathologists
have finished deliberating and have decided that it is,
after all, not a Wilm's tumour. They have decided that
what he has is a clear cell sarcoma of the kidney. This
is a lot less common than a Wilm's tumour (about 5% of
Kidney tumours).This kind of cancer is a lot more prone
to spreading, we know it hasn't spread to the lungs but
now they need to check that it hasn't spread to his brain
or bones. They will need to do a bone scan, a CT head
scan and take a sample of bone marrow. Kathy Pritchard-Jones
feels that from his behaviour it is very unlikely that
any spreading has occurred. All these test will be done
next week. Assuming no spreading the prognosis is very
similar to Wilm's tumour but he will need a far longer
period of treatment post operation (probably about a year
o f
chemotherapy). They will bring the surgery forward to
reduce the risk of the cancer spreading before surgery.
The date currently suggested is the 23rd February 2005. He
will probably need to stay at St. George's Hospital for
about a week after the operation.
Friday 11th February 2005
We are still hoping to take him home later
today as he is off the drip. He has a bit of a rash on
his face from an adverse reaction to the drug that he
was given to reduce his blood pressure. He is due a course
of chemotherapy, and they want to monitor his reaction
to that as well as how he fares without the fluids drip.
If all is well we'll bring him home, Henry will be happy
to see him again!
Saturday 12th February 2005
The doctors decided to keep Christian
in for further examination as his blood pressure was a
bit high. The good news is that he was released earlier
today and we are now home.
Sunday 13th February 2005
I almost didn't update the site today
because there is no real news. But I guess you may like
to know that Christian has been in a lovely mood for most
of the day. (Auntie) Sam and (Uncle) Paul came around
and he spent most of the day happy and was very excited
with his dancing Dora the Explorer doll.
Thursday 17th February 2005
You may remember that Christian was due
in hospital today to have a head scan and have a sample
of bone marrow taken. He needs a general anesthetic for
these and he unfortunately is not well enough to have
it. He has a bit of a temperature and his breathing is
a bit too fast, they suspect it's a chest infection. He
has been given antibiotics and will be staying in the
Royal Marsden for a night or two for further observations.
We hope to reschedule those two tests for when he's better.
We still hope to go ahead with the bone scan tomorrow.
Next Wednesday's operation should still go ahead as planned.
Friday 18th February 2005
Christian has still been a bit unwell
today so he's been given antibiotics. The good news is
that he managed to stay still for the CT head scan without
anesthetic, and that was negative. The bone scan and bone
marrow sample will have to wait until Monday. His chemotherapy
will wait until tomorrow too when , hopefully, he'll feel
better. Christian will soon look just like his dad; his
hair has started to fall out so I'm taking my clippers
in tomorrow and he'll get a grade 1!
Monday 21st February 2005
Christian has been much better for the
last couple of days. The antibiotics seem to have cleared
up the infection and he is eating and drinking, if somewhat
selectively. He had the operation today to take a sample
of bone marrow and we should get the results for that
tomorrow. He also had a tube put down his nose to make
it easier to feed him, this lasted about 5 minutes after
he came to, when he pulled it out. Oh well; he's eating
well at the moment so it's not a major problem, we may
have to try that again. Unfortunately there is not enough
time for the bone scan now until after he recovers from
the operation on Wednesday (when the kidney and tumour
get removed). We should get the results from the bone
marrow tomorrow. We should take comfort from the fact
that the doctors are very confident that the cancer hasn't
spread and I guess the fact that he was playing football
with his Nana this evening should confirm that. Tomorrow
we are taking him to St George's in the afternoon were
he is getting some tests to prepare him for Wednesday's
operation. We should be able to bring him home for a night
before taking him back to the hospital were Keith Holmes
will perform the surgery. After the operation he may stay
there or be moved somewhere else for recovery. By the
way, I did take my clippers in yesterday and cropped his
hair, and he does look like his dad. He also looks like
he lives in a caravan and has a dog on a string. I'll
take a photo of him tomorrow and share it with you...
Tuesday 22nd February 2005
We took him from the Royal Marsden to
St George's this morning for some blood tests. He will
have the operation there tomorrow morning. We are now
home and as he was in such a good mood I took some photos
to show you the new haircut (here
they are).By the way, Claudia received this from a
family friend in the US who is a cancer specialist...
From: Terrie Pustilnik [mailto:tbpmd@swbell.net]
Sent: 19 February 2005 2005 17:35 To: 'Claudia Blandford' Cc:
harold.behrman@yale.edu; bob.parish@enscitech.com Subject:
RE: Christian I hope Christian's tests have come back
OK. I am praying and thinking about him daily. There is
a very recent article looking at clear cell sarcoma of
the kidney in the Journal of Clinical Oncology (deb vol
22). They had 40 children and were trying to compare 2
different ways of doing chemotherapy. The chemotherapy
that they were using was vincristine, doxorubicin and
dactinomycin. The patients ranged in stage from 1 through
4. (Stage is determined by seeing if there has been any
spread of the cancer or not). Stage I is early and Stage
IV means there has been spread . Patients had surgery
and usually some radiation therapy to the area where the
cancer was following surgery. It appears that the longer
chemotherapy treatment was associated with a longer survival
time. The overall 8 year survival was very good at 87%.
This means that even though your son may have an aggressive
cancer, the odds are in his favor that he is going to
do well. (But he may be in for a fair amount of treatment).
Christian is hopefully stage 1 or 2, so
this sounds positive.
Wednesday 23rd February 2005
The surgery seems to have gone very well,
Christian was in theatre for 5 hours. The surgeon, Keith
Holmes is confident he removed all the tumour. It was
10cm x 15cm and 1.1Kg, almost 10% of his body weight.
He is now recovering at the Pediatric Intensive Care Unit
at St. George's. Here are a couple of pictures (picture
1 and picture 2).
I have come home for a couple of hours and will be going
back to spend the night with him there. Claudia will be
home tonight.
Thursday 24th February 2005
Christian is now out of intensive care
and into his own room in St George's. The phone number
there is 0704 6200076 (x3517), Claudia is there tonight.
He is sleeping lots and whimpering a little bit but is
being kept comfortable by pain killers. Most of the tubes
and monitors that he was on yesterday have gone so he
looks a lot less scary. We may be moving him back to The
Royal Marsden or The Portland in the next couple of days
if he is well enough. The prize for "best tough love
e-mail" goes to Neil Gillespie for the following...
Great to hear all went well.
Just imagine if it was you and 10% of your body weight.
They’d need a crane!
Neil
As if coping with cancer in your child
wasn't enough....
Saturday 26th February 2005
We have, remarkably, been sent home. To
quote the surgeon, "it is a record breaking recovery
from a five hour operation". Photos
here
Monday 28th February 2005
A few people have asked me how Henry is
coping with all of this. This evening, just after I put
him to bed I asked him if anything was worrying him. Henry
said "Yes, when Christian grows up will he be a man
without any hair even on his legs?". I explained
that after the medicine stops, his hair will come back
and by the time he is three he will be back to normal.
He seemed happy with this but then said something else
was worrying him, I asked him what it was and he replied
"When I grow up I don't know if I want to be an astronaut
or a normal man, because I want to be both".
Now there is a conundrum. Christian
is well. A bit delicate, but recovering well.
Thursday 3rd March
Christian was due back at the Royal Marsden
today for a bone scan. The idea was to give him a sedative
and then he would fall asleep and would lie still while
the scan took place. The doctors even hoped that he would
remain sleeping as they inserted a nasal gastric tube.
Unfortunately two doses of sedative were not enough and
Claudia had to hold him down as the scan took place. The
good news is that the bone scan was all clear and the
results of the marrow test last week were clear too. So
all the tests have been done and there has been no spreading
of the cancer that they can see outside of the kidney.
The pathologist's report on the kidney also came back
today. It confirmed the fact that it was a stage 2 clear
cell sarcoma. The plan for post operation treatment has
now been drawn up. He will be taking 3 different types
of chemotherapy drugs, one which is weekly for 6 weeks
and the other two are every three weeks for 6 months to
all run concurrently. There will be no need for radiotherapy.
Bearing in mind we were expecting chemotherapy for a year
this is very good news. He took one dose today and next
Friday he will take the first triple dose. All the treatment
is being done as an outpatient at the Royal Marsden. Christian
has lost quite a lot weight recently, which is why the
doctors are keen to get nutrients into him with the tube
up his nose. He has, however, started eating again and
we are hoping this continues so he builds up his strength
for next Friday.
Tuesday 8th March
Just a quick note to say that Christian has been very
happy for the last couple of days. He is eating and drinking
well and is looking much better. He is a lot stronger
than he has been for the last month and is walking around
and playing normally. He is very giggly and has spent
a lot of the time doing
this.
On a separate note, Claudia and I would like to thank
all of you for your kind words, generous gifts and kind
hearted actions over the last few weeks. We are very fortunate
to have so many thoughtful friends and such loving families.
Claudia is panicking that she has not written any thank
you letters, but I guess that's Claudia...
Thursday 17th March
I have started to get calls from people asking me to
update the site and I guess I shouldn't just write when
there is a problem. Christian is still pretty good, he
had a couple of niggly days after the chemo, but he is
now pretty happy most of the time. For some reason he
has taken to waking up at 5.30 - 6.30 am every day, but
that is not a major problem. He is going in on Friday
for a dose of Vincristrine (the weekly chemo drug) and
we are hoping he continues to be a robust as he has been
so far.
Monday 21st March
Christian had a high temperature yesterday so I took
him to St George's. I spent the night with him there and
he has now been transferred to the Royal Marsden after
much pleading from us. He has to stay in hospital for
a couple of days as he needs intravenous antibiotics.
The chemotherapy knocks the white blood cell count which
makes it difficult for him to fight infections without
help. We are hoping he'll be back home later this week.
Claudia is currently at the Royal Marsden with him.
Wednesday 23rd March
Claudia brought him home today. He seems a bit better;
as he is going in to the Marsden tomorrow for chemo, they
were happy for him to spend the night at home.
Thursday 24th March
Claudia took Christian down to the Royal Marsden today
for his chemotherapy. Unfortunately he's not very well
so they have decided to keep him in. I'm on my way down
there to take over and Claudia will be home tonight. The
phone number of our room should still be 0702 8301719.
Friday 25th March
I have just brought Christian home. He has a nasty cough
but they think that it is viral, not bacterial and therefore
not any more dangerous than if he wasn't neutropenic.
Claudia is taking him in for a checkup on Sunday morning
to make sure that he is still OK. Henry and I will be
going off together for a week's father/son bonding on
a ski trip which was booked months ago. I thought about
canceling it but Claudia wouldn't let me, and if she did,
Henry would never forgive me!
Sunday 3rd April
Henry and I returned from the slopes today
(photos here). Unfortunately
Christian has not been well in our absence. The portacath
(a tube fitted to an artery near the heart to allow access
the the bloodstream) has become infected. He and Claudia
have spent all of the week at The Royal Marsden where
he has been on antibiotics.
He needs a further 10 days of treatment
which, apparently, he has to finish off at St George's,
apparently they need the beds at the Royal Marsden for
chemotherapy treatment. We are not very happy about this
as The Royal Marsden is far more comfortable and, we feel,
he gets far better care there.
We are trying to find an alternative hospital
or another arrangement, for example a private nurse to
come to the house and administer the antibiotics 4 times
a day.
We should find out tomorrow what the plan
is. The good news is that the antibiotics seem to be working
and he is very happy in himself at the moment. He has
had an nasal gastric tube fitted which looks a bit scary
but is providing him with lots of nutrition overnight
to build up his strength.
Tuesday 5th April
Christian came home today. He has been given an oral
antibiotic instead of an intravenous one and, as such,
he does not need to go into hospital for it. He seems
in pretty good spirits, if a little bit disorientated.
Tuesday 19th April
I've just got back from a night with Christian on the
ward at St George's so forgive me if this all comes out
as a jumbled mess. All weekend Christian was very happy,
eating and drinking well and generally having fun. Sunday
night something hit him and he was throwing up during
the night. He was due to go to The Royal Marsden for a
checkup and some drugs to boost his white blood cell count
on Monday so we went early and spent all day there. He
had a slightly high temperature and he was given some
antibiotics.
By the end of the day he seemed a bit better so we were
sent home with the strict instructions to phone if his
temperature "spiked" again. By 9.00pm his temperature
was up to 38.7 and however hard I tapped the thermometer
it wouldn't go lower. As Claudia spent a lot of Sunday
night up with Christian, I took him to the ST George's
Hospital.
He has now been given two more types of antibiotics until
they get results of blood tests which show what particular
bug he has. One of the concerns is that he may have either
an infection in his portacath or the same infection has
come back from a couple of weeks ago. If this is the case
he may need to have an operation to have it replaced.
If, however, it is a different infection it may be treatable
at home by either oral antibiotics or by once a day intravenous
antibiotics that the community nurse would administer.
The care at St George's was very good last night and
although it is not as comfortable as the Royal Marsden
it wasn't too bad.
Friday 22nd April
We got back from St George's yesterday. Christian is
on intravenous antibiotics once a day which are being
administered by a community nurse. He has the same bug
as before (an infection of the portacath) but the doctors
are hoping that a full intravenous course will clear it
up. If not he will have to have an operation to remove
and replace his portacath and will be back at St George's
for a week or so.
My mother asked for more photos in the guestbook and
as I am far too scared to ignore her, here
they are . There is also a bit of video here for those of you who have broadband.
I am doing a 10km run on the 3rd July (details
here). I have been wondering what would be the best
place to raise money for and have decided after our stay
at St George's that the money will have most effect there.
There is a ward called the Pinkney Ward which takes most
of the kids with Cancer and they have their own charity
administered by the very efficient Sister in charge. You
can stipulate where you want the money spent and, depending
on how much I raise, I have some good ideas. First on
the list is some high chairs (there are none) and black
out blinds (Christian wakes as soon as the sun comes up)
but I have plenty of other ideas if I raise more.
Morgan Stanley, my very understanding employers, have
offered to match anything I raise up to £2000. Claudia
and I will personally do the same, this means your generous
donation could be worth 4 times what you give. To offer
some money send
me an e mail or even better sign
the guest book to publicise your generosity and encourage
others.
Thanks in advance...
Friday 29th April 05
Christian has been home all week, is eating and drinking
well and seems very happy. We are waiting for the antibiotics
course to finish this weekend to see if his infection
comes back or not. If it does come back, there may be
no option but to return to St George's to have his portacath
removed and replaced. Let's keep our fingers crossed.
The good news is that the sponsorship is going fantastically
well. Claudia's company Porcelanosa have very generously offered to match sponsorship for
£2,000 too. Morgan Stanley will match £2,000
per employee involved so we may persuade them to match
all the money raised by getting more of my colleagues
to run! All good stuff.
Sunday 2nd May
Good news and bad news: the good news is that Christian
has been in a fantastic mood for the last couple of days,
he was very taken with his cousins Elizabeth and Thomas
who came around for a barbecue yesterday (Elena took some
photos here and here).
The bad news is that the blood cultures from Friday's
blood tests show that the bug in his portacath has not
been cleared up. He will need the portacath removed in
an operation, then a series of antibiotics and then the
portacath replaced in a different operation. He will probably
go into St George's tomorrow for the first operation.
His hemoglobin levels are a bit low too so he's going
in to St George's for a blood transfusion this afternoon,
which will take a few hours.
Saturday 7th May
Christian had an operation on Thursday to take out the
portacath and came out on the same day. He's got a canular
in his hand (a needle and tube) which is being left in
as he needs more antibiotics. We are taking him back to
St. George's this afternoon for the last dose and they
also want to take some bloods to make sure the infection
has cleared up.
Claudia is taking him to the Royal Marsden on Monday
to discuss the next stage and we'll find out when the
portacath is going to be replaced then
Wednesday 11th May
We were in St George's today for Christian to have an
operation to have a new portacath fitted. He is now home
and all is fine. The only drama was that an antibiotic
was given too quickly (it should have been an infusion
over an hour and it wasn't) and he got "red man syndrome".
This meant he swelled up and was his skin was very itchy,
some drugs soon cleared up the problem.
Claudia is taking Christian back to the Royal Marsden
tomorrow for a triple dose of chemotherapy. He is now
just having the three weekly triple dose, and no longer
has the weekly single dose.
The good news is that we are now halfway through his
treatment. All down hill from here...
Friday 27th May
We were hoping to be heading to our villa in Spain tomorrow
for a week's relaxation over half term. Unfortunately
Christian's neutrophils are a bit low. This means that
even though he is very happy at the moment, he is susceptible
to infections, and a it's not advisable for him to be
too far from home.
This means our villa is free for the next two weeks and
we'll be happy if anybody can make use of it. The details
are here www.villabegur.com.
A small contribution to the sponsorship fund may be required
depending on financial circumstances!
Saturday 4th June
Christian went to the Royal Marsden yesterday for a triple
dose of chemotherapy and some tests . As he is now over
12kg (just) he had the full dose, until now he has been
on 70%. It seems to have hit him fairly hard and he's
been a bit sickly today not being able to keep food or
drink down for long. We're hoping this doesn't last long
as if there's a danger of him getting dehydrated he'll
have to be admitted to hospital so he can get IV fluids.
The good news is that both tests that he had yesterday
(a chest x-ray and an ultra sound) were clear.
Sunday 19th June
We made it through the difficult bit after the chemotherapy
by giving Christian water from a syringe every 10 minutes,
which he managed to keep down. He is now happy again and
is eating and drinking well. There are now only a couple
of weeks left to the run! As you can see from the total
at the top of this page the sponsorship is going fantastically
well.
This will make a real difference to the comfort of the
children being treated at St George's. I have discussed
the money with the sister in charge and the ideas so far
are :
1. New curtains and blackout blinds
2. High Chairs
3. Bed Pans (they can't get any on their budget!)
4. New child friendly decor or pictures
5. Children's cutlery and plates
6. New toys and budget to replace toys when they get damaged
Thanks again to all of those people who have generously
pledged sponsorship. It's not too late if you have not
yet got around to it, just send
me an e mail by clicking here or even better sign
the guest book by clicking here.
Because there are now 9 people running from Morgan Stanley,
they will match up to £18,000! so your donation
could be worth twice what you give.
Monday 3rd July
First things first, Christian has been pretty well recently
hence the lack of updates. His hair is growing back a
bit and his speech is coming on very well. In true Blandford/Parish
style, it is now tricky to keep him quiet.
Yesterday was the 10km run that I have been talking about.
I managed to drag myself around the full distance in a
leisurely 56 minutes, and have been barely able to move
since. There are photos here.
If you were kind enough to sponsor me please send a cheque
to me at
home.
I am Gift Aiding the whole amount raised as though it
was a donation from me to save on paper work so please
make all cheques payable to me. If you would prefer to
make a cheque direct to the charity (St George's Charitable
Foundation) please contact me for a gift aid declaration
form.
Thanks to your generosity and Morgan Stanley's matching,
the Pinkney ward at St George's will receive over £45,000.
It should make a real difference.
Friday 15th July
Christian was due to be having his chemotherapy at the
Royal Marsden today. Unfortunately he has had a high temperature
since yesterday afternoon which is a sign of infection.
Claudia took him to the Royal Marsden where they started
him on antibiotics and then brought him to St George's
where I am spending the night with him at the, now famous,
Pinkney ward.
He has had a bad day with Claudia and was quite upset
most of the day. Fortunately for me, by the time I arrived
the antibiotics had kicked in. They have taken bloods
and will grow cultures to try to identify the bug so they
can decide what the best antibiotic is for the job. That
will probably take a couple of days.
We were hoping to go to Begur in Spain Monday, and my
mum and sisters and all their families were joining us
there next week for another week. We are still hoping
to get there for the second week to join my family.
There are some more pictures of me in pain here.
Don't I look like I'm having fun?
If you want to laugh at pictures of any other of the
runners you can look for them here.
Most of the money has come in now, thank you very much.
If you were kind enough to sponsor me and haven't got
around to paying please either send me a cheque or e-mail
me for my bank detail for direct transfer. For what it's
worth Christian finally fell asleep tonight at 9.00pm
when the sun started to go down. I wish those blackout
blinds were already here...
Sunday 17th July
We've had a couple of nights at St George's
with Christian and he has been put on oral antibiotics
and sent home. It took that much time because the doctors
wanted to make sure that it was not a serious infection
which would need more heavy duty antibiotics and he kept
"spiking" temperature.
We will be going to the Royal Marsden
tomorrow and if he is well enough they will give him the
chemotherapy he didn't have Friday. Henry is very excited
because now that it's school holidays he'll be coming
along, and they've got great toys there.
Claudia keeps bleating on about the fact
that she and Christian were taken from The Royal Marsden
to St George's by ambulance and I haven't mentioned it.
Apparently it was very exciting.
While I was at St George's, I spoke to
Francis, the nurse who will administer the money we have
raised. As the amount raised has grown, its effect will
become more significant. They, apparently, got turned
down a year ago for a grant to improve the treatment room
which is seriously in need of modernisation. This will
now be possible.
They are also getting a new waiting room
(until now parents have had to wait in the kids play room
until a bed is available). Whilst the room has been allocated
for the waiting room, the money wasn't there for chairs
and curtains and so it has been delayed. This should now
be taken care of.
Monday 18th July 2005
The chemotherapy went ahead at The Royal Marsden today.
Unfortunately there was a complication with one of the
three drugs. One of them is a slow drip over 4 hours and
the needle slipped out of his portacath in the last few
minutes and leaked into him. Bizarrely enough the chemotherapy
is far more dangerous out of the bloodstream than in it
and so Christian will have to stay in overnight so he
can be monitored. He needs to have cream applied every
2 hours, it will feel, to him, like a burn beneath the
skin.
Claudia will be spending the night with him but we have
been told he should be released in the morning. We hope
so as tomorrow is his second birthday. We have no real
plans as we were hoping to be in Spain but we'll certainly
have more fun at home than at the Hospital...
Tuesday 19th July
Well he's home. We need to pop back to the hospital tomorrow
to make sure he's recovering from the chemo leak but are
still hoping to fly to Spain in the evening .
He's enjoying his birthday so far and we're having a
little party for him later.
Tuesday 2nd August 2005
We made it! photos here
Sunday 18th August
Christian has been very well recently, hence the lack
of updates, here's a recent picture. His last chemotherapy is scheduled in
less than two weeks, which is an important milestone that
we've been looking forward to.
I have finally collected all the sponsorship money at
the final amount raised is over £47,000. Thanks
very much to all of you for your support. I have received
a couple of letters from St. George's which were very
nice, they are here and here.
Sunday 23rd October
Christian had his last chemo three weeks ago. He got
a temperature on Thursday evening when he was still neutropenic
from the chemotherapy. We took him into St George's and
he has spent the weekend in and out, getting regular intravenous
antibiotics. The doctors think that it is probably viral
and will therefore not be a problem for his body to fight
but it takes 2-3 days to discover if an infection is bacterial.
The protocol is to treat it as though it were bacterial
(hence the antibiotics) until proven otherwise. Hopefully
by this evening no signs of bacteria on the blood samples
taken on Thursday will mean that he is in the clear and
we can stop the course of antibiotics.
He was quite poorly on Thursday but has been fine for
the last couple of days. Hopefully this will be the last
time that we have to go into hospital for something like
this...
On a side note, it is very rewarding to go back to St
George's and speak to the nurses who are so happy with
the money I was given as sponsorship. The money has not
yet been spent but I am convinced that it will really
help. Thanks again for your generosity.
Tuesday 15th November
All is good in the Blandford household at the moment,
Christian has become a dancer. Here is a video clip, it is a big file (15meg so don't bother
unless you have broadband).
January 1st 2006

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